https://www.selleckchem.com/pr....oducts/necrostatin-1
Families and professionals caring for a child without a definitive diagnosis face unique challenges, particularly in relation to managing uncertainty; access to healthcare; obtaining relevant information and support; and trying to navigate a healthcare system that is often fragmented. We used co-design to inform the establishment of the first UK specialist nursing post dedicated to working with children with undiagnosed genetic conditions and their families. (1) To understand what families and hospital staff want from the service;
Like
Comment
Share
